A journey

Next month is national epilepsy awareness day and I would like to highlight the importance of this condition. Because, well, I have it. And before I got diagnosed I knew nothing about it. At least nothing important, such as how to do if someone is having a seizure.
My epilepsy journey, or whatever you call it began when I was 14 and got my first seizure. Usually, you don't get the diagnosis after the first one and it took a whole year before I got my second and then I started on medication.

The thing is, there's a LOT of different kinds of epilepsy, different kinds of seizures. I did not know about this at all. I get the one I thought everyone gets, falling down on the floor, shaking. But for some, they can still be conscious and all, or have a seizure that only lasts a couple of seconds. But equally important.

We all face different struggles but one thing we have in common is that we have triggers, stuff that could lead to a seizure, and also side effects from the medication. From the years I've been reading about other peoples experiences in the group I'm on Facebook, is that we all face common things. My triggers are sleep, which is very common. All my seizure yet has happened when I'm tired, usually early in the morning. And I need to keep how many hours of sleep I get every night under control. If not, I might get a seizure and be out all day.


Everyday things could be affected. Strobe lights, for instance, I don't get seizures from them but they tend to make me feel really bad. It helps to have people understand because a lot of people don't know much about it. I find it annoying when people don't understand why I have to go home early because I need to get up early next day, and sometimes people even get annoyed at you. I had that and it makes me upset. I hate to be different but it is necessary. And I'm only talking about myself here, everyone struggles differently. So just because I say how I feel doesn't mean that everyone feels like that.
I made up a little infographic (first one, don't laugh) to tell little about what to do and how to read more about it.
And one last thing, purple is the epilepsy colour and remember 26th of March!


Leave a comment

Your email address will not be published. Required fields are marked *